Ssi for autistic child reddit If you had a job, first SSI would apply a disregard to some of your income. 37K subscribers in the Autism_Parenting community. I know the SSI process is a beast and honestly even after a few hours of research I’m still unable to see if I would qualify and/or how much help I would get in total for SSI for both. Getting SSI for Children With Autism. I had to write a letter stating that he pays a monthly contribution that he agreed on. Their mother is not in the picture. but it was linked to anxiety and deoresh. My son (age 5) had been approved for SSI for his autism. SSI is income based - at least for minors. With as much as you guys are working you won't qualify for SSI for your child. Applied for autistic son, not sure what the status is. We tried to apply for SSI, but we were told we need to apply for Medi-Cal first. disability requirements to be considered . If you need service in Spanish, press 7 and wait for a Spanish-speaking representative to help you. All the possible combinations make it impossible to fit on a convenient chart. I love them both but if I had been much older before I had them, I probably would have chosen to go child-free. Thinking others are idiots won't get you very far in this process. Does your child require very specific foods, and fabrics because of their conditions, now that is something that may be approvable for example yes i completed everything the day she got approved. Your child must meet all the following . A child may be eligible for SSI disability benefits until attainment of age 18 (see I (43M) have a 13 year old son who is L1 autistic and academically gifted, especially in the STEM field. WE ARE PROTESTING REDDITS API THIRD PARTY APP INCREASE. and to help her get SSI so she at least has some form of income to help contribute to costs of living, Medicaid eligibility, and state disability services benefits. BCBS standard. This guest post is brought to you by Deanna Power, the Director of Outreach at Disability Benefits Help, an independent Because your daughter has autism and a learning disability doesn't mean she qualifies for SSI. That is compared to the individual FBR of $943. But one question, how have you been able to take him to medical appointments? Some of our son’s doctors were telling us that they would not allow us to sit in on his appointments without our son’s consent and the New York has this for children with strictly medical needs and children with developmental disabilities. This is so frustrating. My son was born in 2022 and recently was diagnosed with autism level 3 non verbal. Rough math is add 2x(FBR+$20) to the amount on We would like to show you a description here but the site won’t allow us. Working backwards using 2024 numbers (and assuming all income in the household is earned income from one or both parents, and that there are 2 ineligible children): We provide free interpreter services to help you conduct your Social Security business, including helping you complete the SSI application and answering your questions. If the child is not yet age 18, the income and resources for parents are countable. one of my children is autistic, and she was not an easy child to raise. I did some research for my son and I after we got diagnosed and decided it wasn’t worth the hoops. Children with certain disabilities can be eligible for Social Security disability benefits beginning from birth. The deemed income is about $2655. The parental income would probably have to be cut in half for this disabled child to get SSI. There aren't really regional autism centers here the way CA has. I am a single mom with two autistic children. Please read our stickied FAQ and reach out via modmail with any questions. r/autism • by justanothermom2582. net comments sorted by Best Top New Controversial Q&A Add a Comment If he gifts you money (later or in his will), then it counts as income for SSI purposes & will decrease your SSI payments by $1 for $1 after an initial $20 exclusion. This article provides a comprehensive guide on the benefits of applying for To determine if a child with autism qualifies for SSI, several key criteria must be met. Backstory: a year ago I applied for benefits for my severely autistic brother whom I have had custody of since he was 8 or so, he is now 16. The process for qualifying is the same if your child can get $10 a month or $914 a month. A deaf may have different needs than a blind child for example. Welcome to the Autism Parenting subreddit! Get the Reddit app Scan this QR code to download the app now. At the same time, We are about 99 percent sure my child has autism. Or check it out in the app stores You could try for SSI, which is Supplemental Security Income, in which case you go to the ssa. Whenever I would complain people would tell me , "That's normal. Although I realize functioning labels can be misleading, she has been considered “high-functioning” for most of her life and was originally diagnosed with PDD-NOS before the reclassification of Autism Spectrum Disorder in the DSM-V. There is no income to deem to the eligible child, so the eligible child should receive a full SSI benefit of $943. I pushed myself to be neuro-typical and mask my autism and push through the physical/emotional/mental pain that came from it. We appled for SSI for my autistic son a month ago. Get the Reddit app Scan this QR code to download the app now. gov website, there’s a link there to fill out a form but I think you can do it online don’t worry if you don’t want to go to an SSA office. $3598. 10. I myself 34M receive disability benefits due to being in a car accident as a pedestrian in 2019 (wheelchair bound not that it matters in particular but just to clarify). We had our income/financial interview a week ago and his disability interview a few days ago with Florida Disability Decision department. Our second child is severely ASD and was recently approved for SSI. There are autism clinics through hospitals and universities but none of them have any way around the state criteria. Whoa whoa I was on SSI in NYC the supplement to SSI was a measly $78 Welcome to the Autism Parenting subreddit! Ask questions*, share experiences and get community support for raising kids on the spectrum. I have 2 children on the spectrum and they receive ssi. Topics: application / appeals processes; chronic and debilitating physical / mental health issues; financial hardships; and how our lives and the lives of our loved ones are impacted. Read the link and do the math yourself. Both income and resources can affect SSI, but there are exclusions that have to be applied. In order for a child with a disability to be eligible for Supplemental Security Income (SSI) benefits, their parent or parents must meet the following eligibility guidelines: Single parents may collect SSI for their eligible children if they have unearned income below $1,926 a month in 2024. Though someone who qualifies for SSDI, also would qualify to receive SSI, the reality is that some one who qualifies for SSI, wouldn’t necessarily qualify for SSDI. Or check it out in the app stores I'm not sure I can give specific advice for SSDI because I am on SSI, but I do know autistic people who have SSDI or both. My autistic child got kicked out of her daycares for being aggressive. You usually have to apply multiple times and it can take years. Surviving spouse at any age who is caring for the deceased’s child who is under age 16 or has a disability and receiving child’s benefits. Really burnt out & accidentally shouted at my baby to "stop!" When he was just making baby noises. 281K subscribers in the autism community. The process was awful and took a whopping 18 months. I got approved a couple of months ago for my 3 year old autistic son under protective supervision. We were denied basically because we exceed their household income limits for our household, but we can definitely use the social security disability income for my son to pay for his treatments. If you're on SSI and earn money, you can earn $85. SSI provides cash benefits for children under the age of 18 whose medical eligibility constitutes acce Yes, a child with autism can be denied Supplemental Security Income (SSI) benefits. We are looking at 12k in backpay. This typically occurs if they fail to meet the Social Security Administration’s (SSA) One of the most common questions parents ask is, “ Can a child with autism get SSI? ” The answer is yes, but there are specific criteria that must be met. Remember Welcome to the Autism Parenting subreddit! Ask questions, share experiences and get community support for raising kids on the spectrum. We limit the monthly SSI payment to $30 when children are in a medical facility . Log In / Sign Up; Advertise To receive SSI (supplemental security income), your child must meet or functionally equal Listing 112. Can You Get Disability Benefits for Autism? Welcome to the Autism Parenting subreddit! Ask questions*, share experiences and get community support for raising kids on the spectrum. Or check it out in the app stores My 9 year old is autistic , has adhd ( medicated ), and anxiety ( medicated ) . What happens to autistic children when they turn 18 if they don’t have parents able or willing to care for them? Children coming out of foster care, orphans etc. Getting disability opens even more access to health/care benefits. my case worker said that she would get back pay for august through november. How much you could get. Welcome to the Autism Parenting subreddit! Ask questions, share experiences and get community support for raising kids on the spectrum. 50 is the deemed income. To functionally equal the Listing, they must have two marked, or one extreme, limitation in the six domains of functionality (SSR 09-01p). Listing 112. Additional Resources and Support. it's something i've thought about for awhile but i'm 19 years old and not educated on the subject at all. So I am a mom and filing for disability. In Canada, autism certainly qualifies you to claim the disability tax credits for your kids, as well as sumbit just about any autism related expenses as medical expenses (even if they aren't medical services). 10, a doctor must agree in writing that your child meet parts A and B of the listing requirements. justanothermom. How To Obtain SSI For Your Child . ) lives at home with my wife and I. We have an intellectually disabled child and BCBS is the only universally accepted insurance in our area. Everyone feels how you do," but I'm realizing that's not true. Adults and children might be eligible for SSI if they have: Little or no income, and ; Little or no resources, and ; A disability, blindness, or are age 65 or older. I make 3800 before tax and they lowered the the benefits slightly. It's 600 per child for ABA with our insurance. I said 430 because the SSI lady told me that's what i could could ask for after she took my mort amount gas water and electric and gave me that figure. In my experience, none of the initial forms mattered, since what got me SSI was hiring a lawyer for an appeal. My disabled adult child is living in our separate granny unit. The federal SSI benefit for 2021 is $794. Once you submit your monthly expensives they will give you the max. we live in kentucky i first applied in july 2023. My child was approved at 18 y/o with autism, ocd, and several other mental and physical conditions. Yes, it is dumb because many of us cannot work because of the disability preventing a child from going to regular care centers so our income is cut in half. They are diagnosed level 2 and very impacted and require 24/7 support. My 6 yr old son has autism. I'm so glad you had this space to share your feelings because they're real and valid. I explained my sons disabilities and the same day I faxed the interviewer over all of his therapy paperwork and doctors paperwork. gov website, there’s a link there to fill out a form but I think you can do it online don’t worry if you don’t want to go to an SSA office SSI benefits are for people over 65 or younger for people with disabilities or who are blind AND have low income and few assets. Your monthly payment depends on your income, living situation, things you own, and other factors. Get app Get the Reddit app Log In Log in to Reddit. If I remember how it goes without a Get the Reddit app Scan this QR code to download the app now. You could try for SSI, which is Supplemental Security Income, in which case you go to the ssa. She is already on Medicaid and has a grant for her local community college. To be eligible for SSI benefits, a child must be under the age of 18 The Supplemental Security Income (SSI) program offers financial assistance to families with children who have severe disabilities, including autism. just wondering if there's any reason i shouldn't apply, i want to know what i'm getting myself into before jumping on it for the Welcome to the Autism Parenting subreddit! Ask questions*, share experiences and get community support for raising kids on the spectrum. 10, for autism spectrum disorder, requires that a child's medical records include documentation of all of the following: Is a check (the masses call it a “crazy check) really mean that much to you? Do you really want the child to be stigmatized by peers? Or, do you want to make sure the child takes advantage of every resource available and that includes you working with the child at home to overcome the deficiencies before the child gets to high school? In Canada, autism certainly qualifies you to claim the disability tax credits for your kids, as well as sumbit just about any autism related expenses as medical expenses (even if they aren't medical services). My gross income is 45,084. To meet Listing 112. Does ssi ask or try to pursue child support the same way Medicaid does? I didn’t know this til it was too late and I only did this because it kept getting recommended to me to apply without my better judgment, but applying for ebt has opened a can of worms Single dad here, father to a 9 year old who is heavily on the spectrum and a non-spectrum 7 year old. If you have a question, maybe someone has already asked it. Expand user menu Open settings menu. Wasnt diagnosed with ASD for the first 7. Which stem from being autistic living in a nt world. Navigating the world of social security can be complex, especially when it comes to accessing SSI for autism. My adult son gets SSI. Find out if you might be eligible for SSI. Welcome to the Autism Parenting subreddit! Ask questions*, share experiences and get community support for raising kids on the spectrum. Open menu Open navigation Go to Reddit Home. I'm working but my wife stays home with our 2 autistic children and baby. That being said, from what I have seen, it’s really really hard to get SSDI when you are heavily disabled, let alone “high functioning”. . I want to get child who is 16 months old benefits for this condition. In the case of parents with autistic children, this monthly benefit and SSI payment can help provide needed therapies and care to maximize the abilities and strengths of their autistic child. Reddit iOS Reddit Android Reddit Premium About Reddit Advertise Blog Careers Press. Part of the evaluation View community ranking In the Top 20% of largest communities on Reddit. I plan to apply for SSI for him when he is 18 so I’ve been making sure I have medical As the other commenter posted, the difference between SSI and SSDI has to do with work history. Do you have an advice on how to navigate this? (She's been approved for SSI, but not yet received any payments. My minor son has autism and I submitted an application 3 times in an attempt for my son to be approved social security disability income for his autism. We were charging our Autistic son Get the Reddit app Scan this QR code to download the app now. r/SocialSecurity A chip A close button. If income is considered, well everyone eligible will be able to get medicaid and disability will not have a role in being eligible. You need to connect whatever it is to your child's disability. They are called Medicaid waivers because the child remains eligible for Medicaid and SSI and the parents income and assets are waived (not considered as part of the program). medically eligible for SSI: • The child, if not blind, must not be working or earning more than $1,620 a I have been on SSI for being disabled for a while now. We are in New York. That is technically a disability to SSI. It includes giving your basic info, your doctor’s info, any conditions you have or medications you’re on, etc. At some point , to better the household and your child, a parent needs to take a step back from work but then the govt would hopefully step in and help. Or check it out in the app stores Pretty sure that's only SSI too. and health insurance pays for their care. Everyone is NOT autistic, and some of us need extra supports to live a decent life. We submit our pay stubs every month and Social Security makes a determination if we're eligible for a SSI payout on a monthly basis (after reviewing our income), but because of our annual income, we haven't actually been paid anything. Please feel free to submit articles to enhance the knowledge Posted by u/boymom04 - 5 votes and 4 comments Legislation was passed to where that will change in 2025. i received a diagnosis of bipolar 2 and level 3 autism the other day. There are a ton of SSI/SSDI questions here, and in an effort to better serve everyone, we're going to start requesting that all questions be asked in this stickied thread. A bit too late. Being a parent is HARD, and being a parent of a severely autistic child is 1000x harder. I've developed my own coping mechanisms to try and "have a life", but they're not really working with the amount of time I need to put into the children, and I'm getting a bit burnt out. 338K subscribers in the autism community. I tried applying and they said autistic child is not eligible based on our income (which is still low income snd just a tiny amount above their "threshold"). There are way too many stories about children on SSI turning age 18 in debt to SSI because their parents did not make timely reports of income and resource changes. she hasn’t received her benefit letter or anything yet. Autism is such a broad spectrum that it truly depends on your ability to do any job without modification (but with reasonable accommodations). For example, my son required a 1-1 "shadow" in JK. Medicaid insurance called me and Reddit has made it clear they will replace (appeals) level for SSA SSI/SSDI hearings, and child disability hearings are a regular thing in our office. Having successfully applied/gotten approved for SSDI and SSI benefits in 2020 after doubting my qualifications for two years prior, I know how daunting it all seems very well. Yes, when my son who has autism was 18, we applied for him to get SSI. I’m a teacher but my wife has to stay at home to take care of our son. Connect with parents of all neurotypes. It's been hell no help at really, can't wait to leave this shit hole forever. We lost food stamps for the entire family because of social security income but i cant spend her benefits on food? On My son has autism also and he is in a program for teens with autism. FBR minus countable income is a negative figure. My parents/family have told me that changing my name will affect my SSI Benefits and payments: Basically they keep telling me that I would have to prove all over again to For multiple eligible children you calculate the amount of deemed income and then divide the total between all SSI eligible children. So if my disability goes through both my kids have to take DAC? Since there is a family limit for ssdi I think 150 percent, my daughter has to spilt amount with my son and then her portion would actually be less than what she gets for ssi. If your disability onset date is before age 26 (or before 46 starting in 2026), you can get an ABLE account & your dad could contribute to the ABLE without effecting the SSI payment. Do not give up. And if the IRS can find your money, so will SSI. The same day, we got a letter saying that due to our "increase in income or resources" our SNAP benefits were being cut from $793 to $402 per month. My son gets Medicaid, and doesn’t have much education expenses being in public school this year now. He got it for a year before his dad died then it switched over to a portion of his dad’s SS which was considerably more money per month. The cap for SSI benefits is around 915 as of this month, and you can only have $2000 worth of income/assets before you benefits get suspended. When I first applied, they told me it would be difficult to prove he needs it, but once I talked to the caseworker, I mentioned the same concerns you listed. The income limits are quite low, currently $2827/month for couples or The differences between SSI and SSDI are significant. NOTE: the Child Disability Report is only available in English. SSI rules about disability. /month and keep it all. Or check it out in the app stores You could try for SSI, which is Supplemental Security Income, What is something a parent of an autistic kid should never do? If the child is over age 18, they can file for SSI only, which would be an appt. Back when I was applying for disability benefits I of course had a case manager who kept us informed along the way and personally called us the day I was approved, it all way rather easy thankfully compared to some of the stories I read here. I'm on SSDI - not for Autism specifically, but I highly suggest getting a disability lawyer - and am in the process of inheriting quite and estate. 1/3 of the child support is excluded, but the amount would have to be reported each month so that SSI would be paid correctly. We had to pay for that our of pocket and were able to claim it as a medical expense. Reply reply Unpopular Opinion: Most parents do not understand their children as well as they think they do Look up guardianship for autistic adult child for your state to view the requirements once a disabled person is eighteen. Please read our stickied FAQ and Surviving spouse at any age who is caring for the deceased’s child who is under age 16 or has a disability and receiving child’s benefits. *If you are a parent wondering if your child is autistic- you MUST use the “is this autism?” flair or your post will be removed. He lives with me, my wife, and our two kids. My 24-year-old daughter is autistic (PDA profile) and has comorbid ADD, OCD, GAD, and MDD. Disability benefits are for those unable to work due to their conditions and lots of people with Cause there’s no way that parents of autism children are both working 2 full time jobs, getting to school and therapies, mentally and physically taking care of the household and children. Anyone is eligible for SSI, even if you've never worked in your life. Or check it out in the app stores Been living here my whole life I have a 3 year old autistic toddler with government insurance. Ive got to go to a doc about random seizures but after that me and worker are gonna look for volunteer stuff. Call our toll-free number, 1-800-772-1213. so i’m confused as to when she will get her first payment and if it takes a whole month after approval like i’ve read everywhere else wouldnt I have worked in respite care for families with autistic children for years, and these feelings ebb and flow. It's a needs based system and you sound like you are probably above the FPL. He’s turning 18 this year. ) This turns out to count as "income" for her. ) My son who’s 5 and level 3 autistic (extremely high need, nonverbal, etc. First and foremost, age requirements play a crucial role. I was curious on what you all spent your back pay on? We are a family of 6 in TN, well under the poverty line. I’m not sure if he will be able to work even after he completes this program and if not I will have additional evidence he isn’t capable of working. I read a statistic recently that said about 50% of autistic adults require a HOW DOES THE SSI DISABILITY PROGRAM WORK FOR A CHILD? To be eligible for SSI benefits, a child must be either blind or disabled: A child may be eligible for SSI disability benefits beginning as early as the date of birth; there is no minimum age requirement. But I Skip to main content. SSI benefits are available to How A Child with Autism Can Qualify For Disability Benefits Updated on January 22, 2024. Research flairs (re: similar topics). We have not received official diagnosis. Also, if you have multiple eligible SSI children, the computations get even more complicated. By understanding the steps involved, requesting an appeal, and seeking legal assistance if necessary, you can continue to pursue SSI for autism and advocate for the support your family deserves. He is deeply passionate in computers/technology and during elementary school, he got straight A with a B to A- grade range in English Language Arts and it has been consistently improving from a C+/B- in English (his weakest subject) during 1st and 2nd grade back in 2017/8. Has anyone ever done this? What Kids can qualify for SSI if they have a serious disability AND live in a household limited income and resources. I know some qualify for SSI, but that’s not much to live on. Hello, I’ve never used Reddit before and I was told to check here since I am struggling to get answers from SSA, they seem to be very busy. We're not currently charging her rent, because we live in a very high rent area (lots of desperate students. /month (some states add to the payment). I was curious on what you all spent your back pay on? Minus $1415. 50 too much for your child to get SSI. I'm gonna be honest here: children are extremely overstimulating and triggering, and there's now evidence that autism is passed down. We are a supportive community created to discuss all SSA disability programs (re: auxiliary / family, CDB, DAC, SSDI and SSI). Unmarried child of the deceased who is one of the following: Younger than age 18 (or up to age 19 if they are a full-time student in an elementary or secondary school). to highschool with who recently gave up her severely autistic daughter to foster parents who specialize in dealing with Welcome to the Autism Parenting subreddit! Ask questions, share experiences and get community support for raising kids on the spectrum. Or check it out in the app stores I got SSI for my son for a year then I was audited and they pulled my bank account numbers and said I had too much money and I had to pay it all back. All children require food and clothes, so those are not approved. Autism news, information and support. My son has an extensive health history and is determined to be disabled. You might want to look up DAC and SSI online as you are confusing eligibility for programs and titles. Your child will get 75 physical therapy and 75 Occupational therapy visits per year, and you can request additional visits if The surfer has a diagnosis of autism from a local neurologist. Children whose symptoms meet the requirements of one of Social Security's "listings" can be approved for disability benefits. my therapist strongly recommended i apply to be on disability for a number of reasons. sggx akcl nswz bwngb hxagtzl gdxbbd mydnuuo iltux kveildao mynnyge